Dear EVERYONE who makes decisions about what I can and cannot see in my online patient portal, YOU have the power to help ensure your patient’s decisions are well-informed.
After living with brain cancer for over eight years, my health insurance changed just a few months ago. I submitted a records request to my old health system so I could transfer my records to new doctors. I was given a copy of all of my doctor’s notes, and was able to read for the FIRST TIME notes about my care.
There isn’t a single thing in the notes I don’t understand, and I believe notes are the kind of helpful narrative I was looking for all along.
For every health question I’ve had over the last eight years, there is a corresponding clarification in my notes. I wish I could have seen these sooner.
YOU have the power to make sure the next 29-year old diagnosed with brain cancer gets to see her notes sooner.
Let’s work together, and open the notes!