1. You might consider sharing your notes with family and/or friends who help you manage your care. It can be very helpful to share your medical information with family members or other informal care partners, but only if and when you wish. Whether or not you want to keep notes entirely private is up to you!
2. Suggest to people you care for that they read their own notes. Share our tools and resources with them so that they can better advocate for themselves.
3. If you want to share notes with others, consider discussing this idea with the doctors, nurses, therapists, and other clinicians who make up your care team.