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Research & Initiatives
- Research
- U.S. Initiatives
- - OpenNotes Research
    Search for and review work conducted by OpenNotes faculty, scholars, and collaborators from a wide variety of settings in the U.S. and beyond.
  - Latest publications:
  - In Anticipation of Sharing Pediatric Inpatient Notes: Focus Group Study With StakeholdersJuly 29, 2022
  - Assessing the impact of patient access to clinical notes on clinician EHR documentationJuly 28, 2022
  - View All Research
- - EHR Proxy Access
    Engaging family care partners through shared access to the electronic health record.
  - Educating Young Health Professionals
    Teaching medical students to offer open and transparent communication.
  - Patient Safety
    The OurDiagnosis (OurDX) Project is an online tool that searches for potential diagnostic breakdowns in ambulatory care.
  - Learning Collaboratives
    Working to embed the practice of open notes into the culture of medicine.
  - NYS Health OpenNotes Collaborative
    Bringing open notes to a broad variety of patients in New York State.
  - Patient Priorities Care
    Testing an online questionnaire designed to help patients prioritize complex health issues
  - MyDischarge Summary
    Testing a scalable solution to improve transitions from hospital to home with a feedback tool for patients and families.
- - Medical Records: Documenting the Social Determinants of Health
    Access, exchange and use of Social Determinants of Health (SDOH) data in clinical notes.
  - OurNotes
    “OurNotes” asks clinicians and patients to create notes together.
  - OurNotes for Care Partners
    Improve patient/care partner clinician communication and connect care partners with needed services.
  - OurResearch: Patients and Investigators Asking Questions Together
    Low Grade Glioma Registry and OPTIMUM: Studying trust in genomic research.
  - OpenNotes Case Studies
    How do you “do open notes” well?
  - International Initiatives
  - International Cross-Comparisons
    Studying effective implementations of transparent records in Sweden, the U.S., and beyond.
  - Nordic eHealth for Patients (NORDeHEALTH)
    Benchmarking and developing personal eHealth services for Scandinavia.
For Patients
- For Patients
- - OpenNotes for Patients
    New to sharing? Find out what you need to know.
  - Reading Your Notes: FAQs
    Notes patients have shared with us and descriptions of how they were used.
  - What Does a Visit Note Look Like?
    The notes are the story of your health care, connecting the other elements of your medical record.
  - Pediatrics & Adolescents
    Access to notes can help families and caregivers manage care.
- - Care Partners
    Open notes can be a tremendous resource not only for patients but also for their care partners.
  - Mental Health
    Reading mental health notes can be a powerful tool in therapy.
  - Patient & Family Advisory Councils (PFAC)
    For PFAC members interested in bringing OpenNotes to their health system.
  - OurNotes: Creating Notes With Clinicians
    OurNotes invites patients to contribute to the notes that document a visit.
For Healthcare Professionals
- For Healthcare Professionals
- - OpenNotes for Health Professionals
    New to sharing? Find out what you need to know.
  - Effects of Open Notes: FAQs
    Sharing notes improves communication, builds more trust, and enhances patient safety.
  - U.S. Federal Rule Mandates Open Notes
    Learn about the new Federal rules.
  - Sharing Open Notes
    A toolkit for implementing open notes effectively.
  - Communications
    Materials for communicating with staff, clinicians, patients, and the public.
- - Pediatrics & Adolescents
    Access to notes can help families and caregivers manage care.
  - Care Partners
    Look at how open notes can be useful to both patients and care partners.
  - Mental Health
    How open notes can be a powerful tool in mental health therapy.
  - OurNotes: Creating Notes With Patients
    With OurNotes, patients are writing notes with their clinicians.
  - Webinars
    Learn more about the research behind the sharing of clinicians’ notes with patients.
News
About
- About OpenNotes
- OpenNotes Teams
- - About OpenNotes
    Learn more about the OpenNotes organization.
  - OpenNotes NEXT
    Open and transparent communication involving all patients and clinicians…the OpenNotes mission for the next decade.
  - History
    Our History: Fifty Years In the Making.
  - Supporting OpenNotes
    We are funded entirely by non-commercial grants, philanthropy, and people like you.
- - Public Policy
    Government policies dictate how much access and control you have when it comes to medical records
  - Contact
    Reach out to the OpenNotes Team.
  - For the Media
    Media highlights, contacts, leadership, and video.
- - OpenNotes Team
    Our team is made up of doctors, nurses, social scientists, health services researchers, and patient advocates.
  - Collaborators
    The OpenNotes Team works closely with patients, families, clinicians and researchers.
  - Advisory Board
    Our Board represent years of experience in patient care, technology, policy, and advocacy.