How to get the most out of mental health notes

Reading mental health notes can be a powerful tool in therapy.

After a behavioral or mental health visit, your therapist writes notes that summarize important information about you. These notes become a part of your medical record. When a note is shared with you, it becomes an “open note.”

Starting in 2021, therapists are required by federal law to share these notes with patients upon request, free of charge. Open mental health notes are written to be a record of your work together with your therapist. Like all medical notes, mental health notes must meet:

  • professional standard requirements
  • cross-coverage, and
  • health insurer requirements if applicable.

These notes are different from “process recordings” or side notes your therapist might take to keep track of their own thoughts. Side notes do not have to be shared.

The most common way to access your notes is through the online secure patient portal which is hosted by your healthcare provider. Using this secure and free portal, you can, among other things, request appointments, message your health care team, and view your health record, including the notes. Generally, if your therapist does not use an online patient portal, you can ask for a free digital or paper copy of your notes. Learn more about the basics of open notes here.

Stacey has a history of anxiety and depression. Learn how she uses open therapy notes to remember what she’s supposed to do between visits.

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  • The note may not be ready. After the clinician writes and approves the note, it will become available.
  • You may need to request access. If your therapist is part of a health network or institution, they should have a request process in place. You should get access to the notes within three days of making the request.
  • If you have requested access to the notes, and you still cannot find them, you may need help navigating the portal. Try contacting your patient portal’s support team so they can help you find the notes.

If there is no request process or your request is denied or delayed, you may be experiencing “information blocking,” which is forbidden by a federal rule. For clarification on what constitutes information blocking and when it is allowable or not, visit www.whereismymedicalrecord.org. You can report information blocking there.

The content of mental health notes can vary depending on your clinician and the type of care you receive. Like medical notes, mental health notes often include a diagnosis, a summary of what you shared with your clinician, medication updates, mental status information, your clinician’s assessment of your health, a treatment plan or next steps, and other information from your appointment. The notes may also include information required primarily to satisfy health insurance requirements.

It’s okay to ask! If you’re interested in reading your therapy notes, it’s a good idea to start by talking with your clinician about it. They can share your notes with you electronically, print out your notes, or support your request to read your notes online using the secure, patient portal if available.

Reading mental health notes may help you:

Become more involved and feel more in control of your health care. After a visit, you can read your notes to review what you discussed with your clinician, your treatment plan, and any changes to your medications. In between visits, you can read your note to make sure you are following the treatment plan and remind yourself to follow up on recommended procedures, tests, or appointments. In preparation for your next visit, you can read your note to remind yourself what you discussed at your last appointment. You might also think about any steps you have taken and any changes or new problems you may be experiencing since your last visit. The notes can also help you prepare a list of questions to review with your therapist at the appointment.

Feel empowered. If you have worries or concerns, it may be helpful to read through the first note or two together with your clinician so you know what to expect. It can take some time to get used to how mental health notes are written. But it can be empowering when you recognize your own capabilities in reading notes, discussing them with your therapist, and using them constructively in many different ways. We have learned that open notes can build trust in yourself and between you and your clinician. Reading your notes may even improve your self-awareness and self-confidence.

“I read my notes because it helps me see the progress I’ve made and the successes I’ve already had. Being in mental health care is hard work. It’s a lot of effort for me to come here and it can be draining at times. When I look back at my notes from last year, I get to view how far I’ve come.”
—Larry, Veteran

Organize care and track progress. Just as in any other appointment, there’s a lot to remember. Going back to read the notes after the appointment may help you manage your illness more effectively. Reading notes can help you understand your condition, your treatment, and your progress between visits. It can remind you of your responsibilities in your own care, including ‘homework’ or follow-up issues to work on between sessions.

Use your notes as a tool for change. You may find that discussing the information in your therapy notes with your clinician can decrease stress you might otherwise hold alone. In addition, you may find that the notes help you to benchmark your progress and motivate you to confront challenges and address difficult changes you hope to make.

“I have a tough time recognizing that I’ve made progress. So it’s nice to read this as a reminder.”
—Patient, David, New York Times

Enhance trust and the therapeutic relationship. A trusting relationship between a patient and therapist is critical to progress and recovery. Being able to read what your therapist writes can help reveal what they are thinking. For many people this can lead to a stronger relationship and richer conversations. It can also help you and your therapist start up an open discussion about topics that may be difficult.

Help make your care safer. When you review your health record, including your medical history, current symptoms, medication dosages, and the care plan, you can help make sure that your record is accurate. When your medical record is up to date and accurate, your care is safer.

Make sure you’re on the same page. Sharing notes serves as a cross-check, improving the likelihood that you and your therapist agree on what was discussed. The notes may also include comments from your therapist about differences in each other’s view and understanding. Understanding these differences can be an important part of any therapy.

Share with a family member or other clinician. Interactions between you and your clinician, and the notes documenting those interactions, are confidential. However, whether they are entirely private is up to you. You can share your notes with anyone you choose. Indeed, you may find it extremely helpful to share your notes with family members, friends, or caregivers who assist in your health care. Sharing notes with trusted friends, family, or caregivers, or other clinicians involved in your care may help keep people up to date with any changes in your medications, health conditions, or care plan. It may also help caregivers or care partners to coordinate your care. But always remember that your personal health information is private, and only you get to choose who you share it with.

Everyone’s experience is different, and many people have questions or concerns.

As you read your mental health notes, keep in mind that they vary in length, may include sensitive information, or could have unfamiliar terms or confusing language that’s often required for meeting professional standards.

You should feel free to discuss with your therapist any issues that arise for you when reading your notes. You may also choose not to read them! Reading such notes may not feel right for whatever reason, and that’s okay too. You know yourself best. It’s important to respect that, and to talk with your therapist about your preferences.

Talking about the things that affect our lives, especially topics that can be difficult to discuss, can be important for recovery in mental health. Here are some strategies for getting started with using open notes as a tool in your therapy:

  1. Talk with your therapist about your expectations with note sharing. This conversation can also help you learn more about your treatment and your clinician’s perspectives. Things you might want to discuss include:
  • Unfamiliar professional terms, abbreviations, or language
  • Reading sensitive information
  • Mistakes, errors, or missing information
  • Too much or too little detail
  • Differences of opinion about diagnoses or treatment
  • Reading surprising, confusing, or upsetting information

If you’re nervous or worried, you may want to consider asking your clinician if you can read some of your notes together.

  1. Develop a plan for what you should do if you become worried or upset by reading your notes, or if you disagree with something written in the notes. This may include talking with a trusted friend or family member, taking a walk, or relying on other strategies that work for you.

“The most important thing is to talk with your therapist about all the typical ways you manage your well-being between visits and how those same strategies can be used while reading your notes.”
—Steve O’Neill, LICSW, JD, Social Work Manager, Beth Israel Deaconess Medical Center, Professor and Research Associate Center for Innovation in Behavioral Health Education & Research Simmons University School of Social Work

  1. Use the R.E.A.D. strategy. The U.S. Department of Veterans Affairs (VA) was one of the first health systems to open all notes to all patients. The VA developed the R.E.A.D. strategy to help patients get the most out of their mental health notes.
  • Step 1: REFLECT. Think about what you hope to learn and choose a reading environment that suits your learning or reading style.
  • Step 2: EXPLORE. Take your time reading your notes because the content or language may be unfamiliar, and keep an open mind about what you are learning.
  • Step 3: ASK. Let your clinician know if you want to discuss your notes or if you need follow up about something, like a test or appointment. And ask your clinician for reading material or trusted websites to learn more.
  • Step 4: DECIDE. It’s up to you to decide how you want to use your notes. Consider how often and how much of your notes you want to read.
  1. Ask questions. You can ask your therapist, “How are you going to write about this in my note?” But, it’s important to remember that while the patient has a right to access to the record, the health professional must still satisfy professional requirements and standards.
  2. Understand sometimes notes are closed. If your therapist feels that reading the information in a note might be harmful to you, they may keep the note from being available on the patient portal. If a note is unavailable, talk with your therapist. Again, you might suggest reading the note together.
  3. Make the best choice for yourself. Open notes are not for everyone. For some patients, just knowing the notes are there and available is enough. Some use the notes as reminders of the work to do between visits, and, for a variety of reasons, others choose not to read their notes. Open notes is a good example of freedom of choice!