Liz Salmi is Senior Strategist of Research Dissemination for OpenNotes. In this role, Liz helps hospitals and health systems understand the changing nature of patient-clinician communication in the digital age, and interpret and implement research emerging from the “open notes” movement. Her research areas of interest include studying how healthcare professionals and patients are connecting through digital tools and joining as partners in research.
After being diagnosed with a malignant brain tumor at age 29, Liz immediately put her digital communications skills to use by blogging, chronicling her daily symptoms, and seeing how much she could learn from her online patient portal. Liz is passionate about helping regular people become more engaged in their own health care by improving their experience as patients.
In addition to her work with OpenNotes, Liz leads the Brain Cancer Quality of Life Collaborative, a multi-stakeholder group dedicated to advancing science and improving the quality of life for people with malignant brain tumors. The group was established in 2017 with funding from PCORI, with a mission to meaningfully engage diverse stakeholders (including patients and care partners) in the prioritization, design, and conduct of research.
Liz was named e-Patient of the Year by the Society for Participatory Medicine. She is a member of the American Medical Informatics Association (AMIA), a Stanford Medicine X e-Patient Scholar, a TEDMED Frontline Scholar, and serves on the National Brain Tumor Society board of directors. Her interests include clinical informatics, citizen science, and human-centered design.