As the OpenNotes movement continues to grow, a broad variety of journalists, patients and health care professionals are taking note. Even better, they’re sharing the facts, data, opinions and experiences of those sharing medical notes. See what the buzz is all about.
OpenNotes Statement: Health Data, Technology & Interoperability: Patient Engagement, Information Sharing & Public Health Interoperability
We support the ASTP/ONC efforts to provide regulatory clarification and protections for those patients and their clinicians whereby “information blocking exceptions for electronic health information (EHI) related to reproductive health care during interoperable exchanges” should be allowed.
Sarabu on HIMSS TV: How AI is “Enabling a New Level of Patient Empowerment”
While attending the Healthcare Information and Management Systems Society (HIMSS) meeting in Boston, Chethan Sarabu, MD, was invited to share how generative AI and large language models (LLMs) can offer patients new tools to help them navigate and understand their healthcare journeys, from diagnosis to treatment.
OpenNotes Leader in Behavioral Health Receives NASW-MA Lifetime Achievement Award
We’re thrilled to announce that Steve O’Neill, LICSW, BCD, JD, has been honored with a prestigious Lifetime Achievement Award by the Massachusetts Chapter of the National Association of Social Workers (NASW-MA). This recognition celebrates Steve’s extraordinary contributions to social work, bioethics, patient care, and transparency in healthcare.
The Importance of Shared Access Features in Online Patient Portals: Insights from Recent Research
Patient portals are vital tools for managing health information, providing patients with direct access to medical records, lab results, and communication with healthcare providers. However, two recent publications suggest their full potential is not realized until these portals support shared access for care partners, allowing them to participate in a patient’s healthcare securely and effectively.
BIDMC Awarded $30 Million by PCORI for Large Study on Cardiac Implantable Electrical Devices
Beth Israel Deaconess Medical Center was awarded $30 million in research funding by the Patient-Centered Outcomes Research Institute (PCORI) for a large study on management strategies for patients with pacemakers and implantable cardioverter-defibrillators (ICDs). Collaborators from OpenNotes will work with Daniel B. Kramer, MD, MPH, and his team to explore patients’ and clinicians’ experiences throughout the study and analyze the data.
OpenNotes gets boost from McGovern Foundation for AI in patient care
The Patrick J. McGovern Foundation (PJMF) has awarded a $200,000 grant to OpenNotes to investigate how artificial intelligence (AI) can further propel health information transparency and open communication between patients and their clinicians. This funding initiates exploration into the evolving landscape of AI in healthcare by focusing on how patients use and comprehend clinical documentation.
Picker Adventures: Peering through a 55-year retrospectoscope with Tom Delbanco, MD
What links “the world’s most beautiful” violin, a schloss in Salsburg, and a bank president who curses a lot? All are covered in this inspiring talk from Picker’s founding Chair, Dr. Tom Delbanco, who traces his own 55-year career, the development of person centered care, and the roots of the Picker Institute.
Advocating for Healthcare Transparency at an International Scale
In the presentation, Liz Salmi discusses the transformative impact of the OpenNotes initiative, beginning with a 2012 study showing significant benefits for patients and care partners and no major changes for clinicians, and concludes with the impact of the 21st Century Cures Act in the U.S., which vastly expanded patient access to their medical information.
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