As the OpenNotes movement continues to grow, a broad variety of journalists, patients and health care professionals are taking note. Even better, they’re sharing the facts, data, opinions and experiences of those sharing medical notes. See what the buzz is all about.
OpenNotes is pleased to announce the launch of a new patient-facing resource, How to Use Open Notes. How To Use Open Notes aims to fulfill needs expressed by healthcare professionals for tools that facilitate discussions among patients, their families and clinicians about notes written in medical records (“open notes”).
OpenNotes partnered with The Light Collective—a national patient advocacy organization—to jointly submit public comment to the Office of the National Coordinator for Health Information Technology (ONC) on the Proposed HTI-1 Rule on Health Data, Technology, and Interoperability.
In 2023, NYHealth selected 14 non-hospital systems from across the state for grants totaling nearly $800,000 to support them in sharing open notes effectively with patients. NYHealth has long supported the spread of open notes throughout New York State. Most recently, in response to the note-sharing mandate, NYHealth supported a cohort of 16 hospitals to go from good to great in their note-sharing and associated patient engagement.
Last week, Liz Salmi, a brain tumor patient, health services researcher, and a nationally-recognized patient advocate, delivered a compelling address at the White House Forum on Glioblastoma (GBM) & Diffuse Intrinsic Pontine Glioma (DIPG), underscoring the importance of transparency in healthcare and its positive impact on patients.
Lala: “OpenNotes is uniquely positioned to help society harness the immense benefits that come with people having easier access to their medical records.”
Tom Delbanco, MD, MACP, has been awarded the John Phillips Memorial Award from the American College of Physicians, a national organization of internists. Established by ACP’s Board of Regents in 1929, the award is bestowed for outstanding, lifetime work in clinical medicine that has been innovative and/or had a regional or national impact.
Open Results: Patients overwhelmingly prefer immediate access to test results, even when the news may not be good
In a recent multisite survey of more than 8,000 patients who accessed their test results via an online patient portal account, researchers found that users overwhelmingly supported receiving the results immediately, even if their provider had not yet reviewed them.
Webinar Recording & Resources – Getting It Write: What To Do Now That Patients In England Can Read Their GP Notes
While open notes have been the “law of the land” in the United States for more than a year, in England, adult patients accessing care through the National Health Service (NHS) will for the first time have access to their primary care record online starting Nov. 1, 2022. In this webinar, we will discuss what this development means for patients and GP staff in England.