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A Note From the Director: March 2019
2019 has begun with increasing national interest in the benefits of transparency and patients’ access to their information in health care. Government agencies are focusing on several landmark pieces of health care legislation, including HIPAA and the 21st Century Cures Act. They are asking for input from the public, while the private sector continues to work to update standards for how healthcare data is exchanged among organizations and with patients.
Making Gains in Health Care Interoperability
Last month, the U.S. Department of Health and Human Services (HHS) released proposed rules to improve the interoperability of health information. Rules issued by the Office of the National Coordinator for Health Information Technology (ONC), and further rules presented by the Centers for Medicare and Medicaid Services (CMS), put the 21st Century Cures Act into law. The rules are parallel and interconnected. We spoke with Micky Tripathi, president and CEO of the Massachusetts eHealth Collaborative (MAeHC) and a nationally recognized leader in health information technology, to get a better understanding of what these proposed rules mean and how they may impact OpenNotes.
Open Dialogue on Mental Health with Stephen F. O’Neill, BCD, JD
We sat down with Steve O’Neill, Social Work Manager for Psychiatry, Primary Care, Pain Management and Infectious Disease, as well as Associate Director of the Ethics Support Service at Beth Israel Deaconess Medical Center (BIDMC). Steve is also a Clinical Instructor in the Department of Social Medicine and a Faculty Associate in the Center for Bioethics at Harvard Medical School. We asked him why he thinks sharing notes may become increasingly important for both patients and mental health professionals.
SXSW Conference: Engage with OpenNotes at SXSW
SXSW is one of the best-known annual conferences in the US focusing on trends in technology, music and film. OpenNotes is proud to present at the conference on March 9th. Our Executive Director, Cait DesRoches, DrPH, and Senior Strategist, Liz Salmi, will be featured in a panel discussion called: “Transparency in Healthcare, One Note at a Time.” Please connect with our team during the event, either in-person or virtually…
Trend Report: Improving Health Data Sharing for Patients and Clinicians
Here are a few pieces about improving health data sharing for patients and clinicians that have piqued our interest recently. “The Limits of Health Data Aggregation: Why our health records don’t tell our whole stories”.
Patient advocate Katie McCurdy pens a powerful essay for Medium on how “large swaths of our human existence are not captured in our medical records.”