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Research & Initiatives
- Research
- U.S. Initiatives
- - OpenNotes Research
    Search for and review work conducted by OpenNotes faculty, scholars, and collaborators from a wide variety of settings in the U.S. and beyond.
  - Latest publications:
  - Perspectives of Patients About Immediate Access to Test Results Through an Online Patient PortalMarch 20, 2023
  - Patient Online Record Access in English Primary Care: Qualitative Survey Study of General Practitioners’ ViewsMarch 17, 2023
  - View All Research
- - EHR Proxy Access
    Engaging family care partners through shared access to the electronic health record.
  - Educating Young Health Professionals
    Teaching medical students to offer open and transparent communication.
  - Patient Safety
    The OurDiagnosis (OurDX) Project is an online tool that searches for potential diagnostic breakdowns in ambulatory care.
  - Learning Collaboratives
    Working to embed the practice of open notes into the culture of medicine.
  - NYS Health OpenNotes Collaborative
    Bringing open notes to a broad variety of patients in New York State.
  - Patient Priorities Care
    Testing an online questionnaire designed to help patients prioritize complex health issues
  - MyDischarge Summary
    Testing a scalable solution to improve transitions from hospital to home with a feedback tool for patients and families.
- - Medical Records: Documenting the Social Determinants of Health
    Access, exchange and use of Social Determinants of Health (SDOH) data in clinical notes.
  - OurNotes
    “OurNotes” asks clinicians and patients to create notes together.
  - OurNotes for Care Partners
    Improve patient/care partner clinician communication and connect care partners with needed services.
  - OurResearch: Patients and Investigators Asking Questions Together
    Low Grade Glioma Registry and OPTIMUM: Studying trust in genomic research.
  - OpenNotes Case Studies
    How do you “do open notes” well?
  - International Initiatives
  - International Cross-Comparisons
    Studying effective implementations of transparent records in Sweden, the U.S., and beyond.
  - Nordic eHealth for Patients (NORDeHEALTH)
    Benchmarking and developing personal eHealth services for Scandinavia.
For Patients
- For Patients
- - OpenNotes for Patients
    New to sharing? Find out what you need to know.
  - Reading Your Notes: FAQs
    Notes patients have shared with us and descriptions of how they were used.
  - What Does a Visit Note Look Like?
    The notes are the story of your health care, connecting the other elements of your medical record.
  - Pediatrics & Adolescents
    Access to notes can help families and caregivers manage care.
- - Care Partners
    Open notes can be a tremendous resource not only for patients but also for their care partners.
  - Mental Health
    Reading mental health notes can be a powerful tool in therapy.
  - Patient & Family Advisory Councils (PFAC)
    For PFAC members interested in bringing OpenNotes to their health system.
  - OurNotes: Creating Notes With Clinicians
    OurNotes invites patients to contribute to the notes that document a visit.
For Healthcare Professionals
- For Healthcare Professionals
- - OpenNotes for Health Professionals
    New to sharing? Find out what you need to know.
  - Effects of Open Notes: FAQs
    Sharing notes improves communication, builds more trust, and enhances patient safety.
  - U.S. Federal Rule Mandates Open Notes
    Learn about the new Federal rules.
  - Sharing Open Notes
    A toolkit for implementing open notes effectively.
  - Communications
    Materials for communicating with staff, clinicians, patients, and the public.
- - Pediatrics & Adolescents
    Access to notes can help families and caregivers manage care.
  - Care Partners
    Look at how open notes can be useful to both patients and care partners.
  - Mental Health
    How open notes can be a powerful tool in mental health therapy.
  - OurNotes: Creating Notes With Patients
    With OurNotes, patients are writing notes with their clinicians.
  - Webinars
    Learn more about the research behind the sharing of clinicians’ notes with patients.
News
About
- About OpenNotes
- OpenNotes Teams
- - About OpenNotes
    Learn more about the OpenNotes organization.
  - OpenNotes NEXT
    Open and transparent communication involving all patients and clinicians…the OpenNotes mission for the next decade.
  - History
    Our History: Fifty Years In the Making.
  - Supporting OpenNotes
    We are funded entirely by non-commercial grants, philanthropy, and people like you.
- - Public Policy
    Government policies dictate how much access and control you have when it comes to medical records
  - Contact
    Reach out to the OpenNotes Team.
  - For the Media
    Media highlights, contacts, leadership, and video.
- - OpenNotes Team
    Our team is made up of doctors, nurses, social scientists, health services researchers, and patient advocates.
  - Collaborators
    The OpenNotes Team works closely with patients, families, clinicians and researchers.
  - Advisory Board
    Our Board represent years of experience in patient care, technology, policy, and advocacy.

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NEW WEBINAR

Getting It Write: What To Do Now That Patients in England Can Read Their GP Notes

Tuesday, November 1, 2022 | 8am Pacific Standard Time (PST)
11am Eastern Standard Time (EST) / 3pm Greenwich Mean Time (GMT)

While open notes have been the “law of the land” in the United States for more than a year, in England, adult patients accessing care through the National Health Service (NHS) will have access to their primary care record online for the first time starting Nov. 1, 2022.

In this webinar, we’ll be joined by open notes experts and discuss what this change means for patients and general practitioner (GP) staff in England.

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