OpenNotes marks a fundamental change in the way doctors, nurses and others communicate and share information with patients. The results are always personal, and often powerful.
We’re honored to be connected with many remarkable patient activists from across the country. This video includes a few who, in addition to the countless other things they do, are helping to spread the word about OpenNotes and the power of knowing what’s in your medical record.
In this video OpenNotes co-founders, Tom Delbanco, MD, and Jan Walker, RN, MBA, share the results of the initial OpenNotes study published in the Annals of Internal Medicine in 2012. And patients and doctors who participated in the study discuss the benefits of note sharing.
Stacey has a history of anxiety and depression. Her symptoms became worse after a diagnosis of multiple sclerosis and she began seeing mental health a mental health therapist who offered to share visit notes with Stacey. The notes help Stacey remember what was discussed at the visit and what she’s supposed to do between visits. […]
Merelyn Hong believes that access to notes is important for all patients, no matter what language is spoken at home, because the information is there whenever it’s needed. She says the notes are an important tool that can be shared with family members or fiends who can help navigate the English language and the health […]
Eileen Hughes’ health is complicated. She’s managing type-1 diabetes and other chronic conditions. Having access to her notes has brought her greater understanding of her illnesses and helps her manage and feel in control of her health and health care.
If Ellen Godfrey has questions about what she discussed with her primary care doctor, she looks first to her notes. She says OpenNotes has helped her better manage her high blood pressure, and that reading notes has also enhanced her relationship with her doctor.
Tony understands that taking medications is a part of his daily life, and he knows that if he doesn’t take them as prescribed, his health will suffer. He says having having his doctor’s notes available to to him using OpenNotes, is like having another person remind him to take his pills.
Maine primary care doctor, Peter Elias says OpenNotes transformed his practice. It made office visits more productive, and collaborating with patients helped turn the note into a tool for change.