Doctor Fabienne C. Bourgeois introduces her recent article “Ethical Challenges Raised by OpenNotes for Pediatric and Adolescent Patients”. The article has been published online (ahead of print) on May 18th, 2018.
We’re honored to be connected with many remarkable patient activists from across the country. This video includes a few who, in addition to the countless other things they do, are helping to spread the word about OpenNotes and the power of knowing what’s in your medical record.
By Hannah Chimowitz, BA & Sigall K. Bell, MD – posted first on The Joint Commission Blog
An estimated 43.5 million adults in the United States provide unpaid care to an adult or child for an average of 24.4 hours each week.1 More than half of these caregivers also work full time.2 Because patients supported by caregivers are elderly, frail, or chronically ill, informal caregiving represents a subset of health care interactions that are particularly complex, prone to errors, and costly.
By Kevin Bolduc – posted first in the Center for Effective Philanthropy Blog on February 27th 2018
Transparency — being open, honest, and clear — is a key driver of strong relationships between funders and grantees. It’s valued by foundation and grantee CEOs alike, and grantees think foundations are doing a decent job of being transparent (though more so in sharing about their processes than their learning).
by Barbara Sadick – posted first on The Wall Street Journal on February 26th 2018
With OurNotes, patients can see their doctors’ notes before appointments, as well as detail what they want to talk about during their visit.
Merelyn Hong believes that access to notes is important for all patients, no matter what language is spoken at home, because the information is there whenever it’s needed. She says the notes are an important tool that can be shared with family members or friends who can help navigate the English language and the health
by Jared Klein, MD, MPH
SEATTLE, WA – Sharon [pseud] had struggled with her blood pressure for years, but when she ended up in the ER experiencing chest pain I couldn’t help thinking how I may have failed as her doctor. We had discussed her blood pressure many times, but I’m not sure if she really “got it.”
RICHMOND, VA – After losing her father to a medical error, Dr. Wolver’s support of OpenNotes got personal.
Here’s her story about bringing OpenNotes to Virginia Commonwealth University Health.
It’s been a remarkable year for OpenNotes. In 2017 the number of health systems sharing notes and the number of patients with access to notes doubled. We’re excited by the momentum OpenNotes is gaining, but there’s still plenty of work ahead. Here are ten highlights from 2017 that have us energized for the New Year.
by Betsy Furler, mom and caregiver
HOUSTON, TX – As the mom of a medically complex child, I was aware early in his life that I would need to help him learn how to manage his health as he was growing up.
Henry was first hospitalized at three weeks of age, and I quickly realized my involvement in his medical care was extremely important.