Working to embed the practice of open notes into the culture of medicine
Open Notes in Oncology: Patient versus Oncology Clinician Views Cancer Cell (2020)
Improving Patient Access to Notes on Patient Portals OpenNotes white paper (2018)
Why learning collaboratives?
Despite rapid growth, considerable work remains for the OpenNotes team. In the fall of 2020, fewer than 15% of Americans are offered easy access to clinical notes, and OpenNotes estimates that roughly 10-12% of U.S. health care organizations offer patients such access through an online portal.
Evidence suggests many of these organizations have few patients reading their notes. We have learned that nominal access to patient portals through electronic health records (EHR) is not sufficient to meet patient needs.
Through partnerships created by the National OpenNotes Learning Collaboratives, we work to establish and spread best practices for helping patients and providers better understand the value of reading notes. Robust implementation requires both that patients can easily access this information and that clinicians actively encourage them to read them…and share them, as needed, with care partners.
Open notes appear to send a strong message about transparency and inclusivity, and patients often report that they trust their clinicians more.
Learning Collaborative Leads
Stephen F. O’Neill, BCD, JD
Oncology & Open Results
Patient/Family Advisory Councils
Deb Wachenheim, MPP
Pediatrics / Adolescents
Amanda Norris, MDiv, MTS
Fabienne Bourgeois, MD, MPH
Amanda Norris, MDiv, MTS
Learning Collaborative foci
Learning collaborative topics were chosen based on interest from the OpenNotes community, or as areas in need of further research. The current collaborative focus is on:
- Mental Health
- Oncology & Open Results
- Patient/Family Advisory Councils
- Pediatrics and Adolescents
- Writing Better Notes
The learning collaboratives operate separately, and activities may involve:
- Serving as a conduit for inter-network communication
- Creating toolkits, learning curricula, and resource directories for potential adopters
- Offering learning opportunities focused on best practices for implementation
- Nurturing informal advisory channels to generate collective commitment to change
Learn how to cite OpenNotes in your work.
You may be interested in
Please consider supporting OpenNotes
We are funded entirely by non-commercial grants, philanthropy, and supporters like you. Consider a tax-deductible gift of any size to support the OpenNotes movement. Your entire donation will go to OpenNotes .