The growing number of National OpenNotes Learning Collaboratives share a mission: To embed in the culture of medicine the practice of sharing clinician notes with patients and, often, their families.
Lead: Stephen F. O’Neill, BCD, JD
Lead: Liz Salmi
Patient/Family Advisory Councils
Lead: Deb Wachenheim, MPP
Pediatrics / Adolescents
Lead: Amanda Norris, MDiv, MTS
Co-Lead: Fabienne Bourgeois, MD, MPH
Writing better notes
Lead: John Santa, MD, MPH
About National OpenNotes Learning Collaboratives
The purpose of the National OpenNotes Learning Collaboratives is to increase the number of patients and care partners who:
- Have easy access to their clinical notes
- Are reading their clinical notes.
We do this through research dissemination and network building.
Learning collaborative topics were chosen based on interest from the OpenNotes community, or as areas in need of further research. The current collaborative topics are:
- Mental Health
- Patient/Family Advisory Councils
- Pediatrics and Adolescents
- Writing better clinical notes
The learning collaboratives operate separately, and activities may involve:
- Serving as a conduit for inter-network communication
- Creating toolkits, learning curricula, and resource directories for potential adopters
- Offering learning opportunities focused on best practices for implementation
- Nurturing informal advisory channels to generate collective commitment to change
Why learning collaboratives?
Despite rapid growth, considerable work remains for the OpenNotes team. Currently, less than 15% of Americans have easy access to their clinical notes, and we estimate roughly 10-12% of U.S. health care organizations offer patients such access through an online portal. Both patient and provider estimates suggest we are still in the early adopter stage of diffusion.
Evidence suggests many of these organizations have very few patients reading their notes. We have learned that nominal access to patient portals through electronic health records (EHR) is not sufficient to meet patient needs.
Through our partnerships created by the National OpenNotes Learning Collaboratives we work to establish and spread best practices for helping patients and providers better understand the value of reading notes. Robust implementation requires that patients can easily access this information and clinicians actively encourage them to read and share notes, as needed, with care partners.
The work of National OpenNotes Learning Collaboratives is supported by the Gordon & Betty Moore Foundation.