Our Executive Director Cait DesRoches, DrPH, looks back on the five years since the implementation of the 21st Century Cures Act Information Blocking Rule in April 2021. It gave patients near real-time access to their electronic health information, including clinical notes. Looking ahead, the focus is on leveraging innovation like AI thoughtfully while ensuring patient voices guide the future of care.
21st Century Cures Act
Liz Salmi Advocates for Transparency in Healthcare at White House Forum on Malignant Brain Tumors
Last week, Liz Salmi, a brain tumor patient, health services researcher, and a nationally-recognized patient advocate, delivered a compelling address at the White House Forum on Glioblastoma (GBM) & Diffuse Intrinsic Pontine Glioma (DIPG), underscoring the importance of transparency in healthcare and its positive impact on patients.
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