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- - EHR Proxy (Shared) Access
    Engaging family care partners through shared access to the electronic health record.
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    Teaching medical students to offer open and transparent communication.
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    Bringing open notes to a broad variety of patients in New York State.
  - Patient Priorities Care
    Testing an online questionnaire designed to help patients prioritize complex health issues
- - Patient Safety
    The OurDiagnosis (OurDX) Project is an online tool that searches for potential diagnostic breakdowns in ambulatory care.
  - Medical Records: Documenting the Social Determinants of Health
    Access, exchange and use of Social Determinants of Health (SDOH) data in clinical notes.
  - MyDischarge Summary
    Testing a scalable solution to improve transitions from hospital to home with a feedback tool for patients and families.
  - OurResearch: Patients and Investigators Asking Questions Together
    Low Grade Glioma Registry and OPTIMUM: Studying trust in genomic research.
- - OurNotes
    “OurNotes” asks clinicians and patients to create notes together.
  - Open Results
    Patients and investigators determining optimal methods for releasing test results.
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    Studying effective implementations of transparent records in Sweden, the U.S., and beyond.
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- - Large Language Model Translation Learning Collaborative (LLM TLC)
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Education
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- - Sharing Notes with Patients: The Basics
    A toolkit for implementing open notes effectively.
  - Communicating About Open Notes
    Materials for communicating with staff, clinicians, patients, and the public.
  - Sharing Pediatric Notes
    Access to notes allows families to manage care and helps children become more engaged in their own health.
  - Sharing Notes with Adolescents
    Access to notes empowers adolescents to manage their health care with more independence.
- - Care Partners
    Look at how open notes can be useful to both patients and care partners.
  - Open Notes for Mental Health Clinicians
    How open notes can be a powerful tool in mental health therapy.
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  - History
    Our History: Fifty Years In the Making.
  - Public Policy
    Government policies dictate how much access and control you have when it comes to medical records
- - U.S. Federal Rule Mandates Open Notes
    Learn about the federal rule on Interoperability, Information Blocking.
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- - How To Use Open Notes
    
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    Visit How To Use Open Notes

liz salmi

Advocating for Healthcare Transparency at an International Scale

In the presentation, Liz Salmi discusses the transformative impact of the OpenNotes initiative, beginning with a 2012 study showing significant benefits for patients and care partners and no major changes for clinicians, and concludes with the impact of the 21st Century Cures Act in the U.S., which vastly expanded patient access to their medical information.

Tagged With: liz salmi, MEDINFO

Liz Salmi Advocates for Transparency in Healthcare at White House Forum on Malignant Brain Tumors

Last week, Liz Salmi, a brain tumor patient, health services researcher, and a nationally-recognized patient advocate, delivered a compelling address at the White House Forum on Glioblastoma (GBM) & Diffuse Intrinsic Pontine Glioma (DIPG), underscoring the importance of transparency in healthcare and its positive impact on patients.

Tagged With: 21st Century Cures Act, featured, information blocking, liz salmi

Minding Wellness PODCAST: Empowerment through Transparency with Cait DesRoches and Liz Salmi

Cait DesRoches, DrPH, and Liz Salmi were interviewed by Claudia Cometa for the “Minding Wellness” podcast. In this episode Liz and Cait talk about the mission and research behind OpenNotes and what they would like to see happen in health care. Listen to the episode here.

Tagged With: Cait DesRoches, liz salmi, podcast

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NEW WEBINAR

Getting It Write: What To Do Now That Patients in England Can Read Their GP Notes

Tuesday, November 1, 2022 | 8am Pacific Standard Time (PST)
11am Eastern Standard Time (EST) / 3pm Greenwich Mean Time (GMT)

While open notes have been the “law of the land” in the United States for more than a year, in England, adult patients accessing care through the National Health Service (NHS) will have access to their primary care record online for the first time starting Nov. 1, 2022.

In this webinar, we’ll be joined by open notes experts and discuss what this change means for patients and general practitioner (GP) staff in England.

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