Care partners are a critical, though informal, part of the healthcare system but are often not well supported by formal structures. OurNotes for Care Partners aims to identify care partners, assess their needs, and offer practical resources to alleviate stress and offer support through the Caregiver Intensity Index.
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Patient researchers lead the way
This work is in and of itself important. But we’re excited also by the transparent, collaborative partnership that Lewis formed with traditional/academic investigators. It offers a glimpse into the future evolution of important healthcare scholarship. Both the leadership and design principles behind the CREATE Trial signal a remarkable change in the culture of research.
Fall Meeting: Shared Access to the Patient Portal for Older Adults
OpenNotes is working on patient portal based solutions to help care partners & older adults get the information they need. We’re excited to invite other collaborators to join us in this effort.
Coalition for Care Partners: New initiative to support care partners through health information technology
An interdisciplinary group of colleagues and affiliate organizations are launching the Coalition for Care Partners: Connecting Care Partners to the Care Team Through Health Information Technology, a new effort to build knowledge and tools directed at strengthening health system capacity to systematically identify, engage, and support care partners in care delivery.
Research team to study audio recordings as way of sharing medical visit information with older adults
Funded by PCORI, The CHRONICLE Trial will study audio recordings as method of sharing clinic visit information with older adults. The study is in partnership with OpenRecordings and OpenNotes.
Information Blocking Rule includes ePHI starting October 2022
Starting on October 6, 2022, the definition of electronic health information (EHI) in the 21st Century Cures Act will expand beyond the United States Core Data for Interoperability (USCDI) Version 1 to all electronic Protected Health Information (ePHI) that a patient has the right to access under the Health Insurance Portability and Accountability Act (HIPAA).…
OpenNotes Statement on Roe v. Wade Reversal
We stand with our partners in healthcare in condemning the Dobbs decision to deny people the basic human right to make choices about their own care.
Recording: Disconnections & Dead Ends: Fixing Proxy Access for Older Adults in Patient Portals
In this webinar you’ll learn about a new initiative by OpenNotes and the Johns Hopkins Bloomberg School of Public Health aiming to fix repair the gaps in health information technology for older adults. You will get a status update on a multi-site demonstration project serving a high proportion of older adults in Portland, OR, Rochester, NY, and Salt Lake City, UT. And, you will learn from a patient and physician/family care partner as they describe their lived experiences navigating proxy access.
AMA STEPS Forward Podcast: Sharing Clinical Notes with Patients
Tom Delbanco, MD, and Catherine DesRoches, DrPH, Co-Founder and Executive Director respectively of OpenNotes, discuss common concerns and best practices when sharing clinical notes with patients.
OpenNotes recognized as an Interoperability Hero by DirectTrust
DirectTrust— a nonprofit devoted to advancing interoperabilty in healthcare—has named OpenNotes as an Interoperability Hero for their work to foster and evaluate the spread and implementation of shared clinical notes (“open notes”), and advance healthcare transparency initiatives in the U.S. and overseas.
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