Although clinician notes are now available to all patients, many of the most vulnerable populations are less likely to read them. This study tracks how ethnicity, race, and language impact who is opening their notes at a high-volume specialty cancer center.
Patient Experience
Near-wins in the pursuit of quality: does transparency matter if no one is looking?
In this new editorial for BMJ Quality & Safety, Sigall Bell, MD and Cait DesRoches, DrPH reflect on how access to medical notes can improve the quality of care, but only if patients are able to read and understand them. In the time between medical visits, when patients are monitoring their own health, AI may open a new frontier.
Chaplains’ Charting in the USA in the Era of “Open Notes:” Recommendations from a Quality Improvement Project
This paper addressed the particular needs of chaplains in oncology settings where relationships tend to be longer. It recommends using strengths-based language, avoiding language that suggests disbelief, shortening notes, and using documentation to extend spiritual care.
A multicenter randomized trial to improve family clinical note access and outcomes for hospitalized children: The Bedside Notes study protocol
https://doi.org/10.1002/jhm.70155 Introduction The 2021 Cures Act mandates caregiver access to their child′s medical notes with few exceptions, yet fewer than 10% access notes during hospitalization. Caregiver review of real-time notes facilitates identification of safety concerns and may enhance patient safety in pediatric hospitals. This trial will evaluate the Bedside Notes intervention—a multifaceted approach to enhance…
People Overtrust AI-Generated Medical Advice despite Low Accuracy
This article presents an analysis of how artificial intelligence (AI)–generated medical responses are perceived and evaluated by nonexperts. The increased trust placed in inappropriate AI-generated medical advice can lead to misdiagnosis.
Hospitalized patient portal access in the post-information blocking rule era
This single-center, cross-sectional observational study highlights low patient portal utilization among hospitalized patients and disparities in access based on race/ethnicity, gender, age, and insurance status.
Users’ perspectives on a demonstration to increase shared access to older adults’ patient portals
As shared access uptake remains low, the Coalition for Care Partners, and three healthcare delivery organizations, co-designed an initiative promoting shared access to the patient portals of older adults.
A Proof-of-Concept Study for Patient Use of Open Notes with Large Language Models
Can AI chatbots help patients make sense of their medical notes? This first-of-its-kind study published in JAMIA Open finds that with the right prompt, large language models may become powerful partners in understanding complex health information.
Patients and families reading their discharge summaries: A cross-sectional analysis of benefits, concerns, and implications
Rapidly spreading information transparency could transform how patients engage in care and communicate with clinicians. Patients and families report benefits from reading discharge summaries; however, over a quarter reported a concern.
Is Routine Discharge Enough? Needs and Perceptions Regarding Discharge and Readmission of Palliative Care Patients and Caregivers
This study investigated the hospital discharge process for palliative care patients and their caregivers, focusing on its patient-centeredness, discharge readiness, and links to readmissions.
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