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Introducing a New OpenNotes Resource: How to Use Artificial Intelligence (AI) and Large Language Models (LLMs) To Understand Your Health Information

This resource offers accessible information about AI, large language models (LLMs), and open notes.

Resuscitating Primary Care: A Triad of Patient, Clinician, and AI Coach

This opinion in the American Academy of Family Physicians (AAFP)’ Family Practice Management (FPM) paints a picture of what the future of care might look like. Two fictional vignettes use an AI coach as a way of bridging the time before a patient can next see their clinician and a way for both parties to review notes from their meeting.

Solutions for Increased Adoption of Patient Portal Shared Access: A Human-Centered Design Approach Using the Double Diamond Model

Using a human-centered design approach, OpenNotes and researchers at the Johns Hopkins Bloomberg School of Public Health explored how to improve awareness and adoption of shared access to patient portals for older adults and their care partners.

Whom Should We Regard as a Legitimate Stakeholder in the Accuracy of Information in a Patient’s EHR?

This case describes a care partner who was distressed by bias and inaccuracies in a loved one’s medical notes. Steve O’Neill LICSW, BCD, JD and Catherine M. DesRoches, DrPH, MSc offer guidance on how the doctors and hospital should respond.

Near-wins in the pursuit of quality: does transparency matter if no one is looking?

In this new editorial for BMJ Quality & Safety, Sigall Bell, MD and Cait DesRoches, DrPH reflect on how access to medical notes can improve the quality of care, but only if patients are able to read and understand them. In the time between medical visits, when patients are monitoring their own health, AI may open a new frontier.

Users’ perspectives on a demonstration to increase shared access to older adults’ patient portals

As shared access uptake remains low, the Coalition for Care Partners, and three healthcare delivery organizations, co-designed an initiative promoting shared access to the patient portals of older adults.

Gaps in the coordination of care for people living with dementia

This study examines care coordination breakdowns reported by patients living with dementia (PLWD) or their care partners. Interventions to improve communication across different care teams are needed to minimize the harmful effects of gaps in care coordination.

Shared access to patient portals for older adults: Implications for privacy and digital health equity

This viewpoint article discusses challenges and opportunities of systematic engagement of care partners through shared access to the patient portal that have been amplified in the context of the COVID-19 outbreak and recent implementation of federal information blocking rules to promote information transparency alongside broader shifts toward care delivery innovation and population aging. We describe implementation considerations and the promise of granular, role-based privacy controls in addressing the nuanced and dynamic nature of individual information sharing preferences and fostering person- and family-centered care delivery.

Negative Patient Descriptors: Documenting Racial Bias In The Electronic Health Record

We found that Black patients at an urban academic medical center had disproportionately higher odds of negative patient descriptors appearing in the history and physical notes of their EHRs compared with White patients. This difference may indicate implicit racial bias not only among individual providers but also among the broader beliefs and attitudes maintained by the health care system. Such bias has the potential to stigmatize Black patients and possibly compromise their care, raising concerns about systemic racism in health care.

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