This piece offers practical guidelines for documenting IPV in trauma-informed, patient-centered ways, while navigating transparency requirements under the Cures Act. It acknowledges proxy access features and risks, but focuses on how OpenNotes can be used safely to empower survivors and build trust.
Case Studies
Solutions for Increased Adoption of Patient Portal Shared Access: A Human-Centered Design Approach Using the Double Diamond Model
Using a human-centered design approach, OpenNotes and researchers at the Johns Hopkins Bloomberg School of Public Health explored how to improve awareness and adoption of shared access to patient portals for older adults and their care partners.
Issue Brief: Shared Access to the Patient Portal
This issue brief summarizes the activities and learnings of the Coalition for Care Partners around shared access. Research has spanned from 2019 to 2025, including the formation of the Shared Access Learning Collaborative. The Coalition offers recommendations for policymakers, clinical leadership, patients, and care partners.
Hospitalized patient portal access in the post-information blocking rule era
This single-center, cross-sectional observational study highlights low patient portal utilization among hospitalized patients and disparities in access based on race/ethnicity, gender, age, and insurance status.
A Proof-of-Concept Study for Patient Use of Open Notes with Large Language Models
Can AI chatbots help patients make sense of their medical notes? This first-of-its-kind study published in JAMIA Open finds that with the right prompt, large language models may become powerful partners in understanding complex health information.
The “Our Words Matter” campaign to reduce stigma and bias in clinical communication: A case report
This case report describes the process of assembling a multidisciplinary team to create an educational campaign with the goal of reducing stigma and bias in the medical record. Campaigns like this one can serve as models for medical and public health professionals who seek to advance health equity.
Except where otherwise noted, the content by OpenNotes is licensed under a Creative Commons Attribution 4.0 International License.
