BOSTON – OpenNotes is pleased to announce that ten extraordinary advocates for health care quality and improvement are the founding members of the OpenNotes Advisory Board. “This is an outstanding
Open visit: a patient’s perspective and expanding national experience
We congratulate Martin on his thoughtful description of how he has opened clinical notes to his patients. We write in response from two perspectives. One of us (D.deB.) is a patient who has become active in the world of patient engagement, a switch in careers triggered by widely metastatic renal carcinoma, now in remission for several years thanks to superb care by physicians and nurses in primary care and oncology. The second author (J.W.) is one of the leaders of the OpenNotes initiative and a health services researcher, with a background in nursing. We touch first on several points that draw on a growing national experience with fully transparent medical records and then offer the perspective of a patient and consumer advocate.
Journal of Oncology Practice: Open Visit Notes: A Patient’s Perspective and Expanding National Experience
HEALTH CARE DELIVERY Perspectives by Dave deBronkart and Jan Walker, RN, MBA Society for Participatory Medicine, Nashua, NH; and Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA We congratulate Martin  on his thoughtful description of how he has opened clinical notes to his patients. We write in response from two perspectives. One…
Society for Participatory Medicine: From OpenNotes to OurNotes: New project heads toward *real* participatory medicine
I’m beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we’ve been striving toward, or what?? For years we’ve written here about the OpenNotes study (OpenNotes.org), funded by the Robert Wood Johnson Foundation, which established that when patients can read their doctors’ unedited visit notes – the hairy detailed medicalese…
e-patients.net – Evidence: “Patients value direct, independent access to their medical exams.” Who knew??
Healthcare providers who are tracking patient experience and patient satisfaction, take note: a new study reported yesterday in Science Daily provides evidence that we patients really like it when we can view the data you collected about us. Even us over-50 ones, who are widely believed to be technologically not up to the task. (Fans of patient autonomy, like…
e-patient’s Dave’s Blog: Beth Israel Deaconess FAQ for their patients reading OpenNotes
By Dave deBronkart On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when I myself got notified that Beth Israel Deaconess (my primary hospital) was activating OpenNotes – and they published a Frequently Asked Questions document. Read the full post on e-Patients.net
e-patient’s Dave’s Blog: The OpenNotes project goes wide: a million patients and families enabled by information!
By Dave deBronkart Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record Standard Operating Procedure. For the first time, an unprecedented number of patients and families – over 1.3 million so far – are enabled to take a big step toward full partnership in their care, by having access to…
Peter Elias, MD: On the road to shared office visits
Nearly a year ago I embarked on an adventure that has been changing how I practice medicine. It is also changing how medicine feels. It began quite innocently. During an office visit to discuss a new diagnosis of a serious and chronic illness, we talked about problems inherent in the need to involve several physicians…
ePatient Dave: Let Patients Help
Congratulations to e-Patient Dave for the publication of his new book, Let Patients Help! This “patient engagement” handbook is written for doctors, nurses, patients, and caregivers and provides concise reasons, tips & methods for making patient engagement effective. To learn more about Let Patients Help or order a prerelease copy please click here.
e-Patient Dave on PBS: “My Health Counts”
Listen to the e-patient stories of Dave deBronkart, Lygeia Ricciardi (official consumer e-health guru at HHS) and Buffalo resident Tom Dixon on PBS, hosted by Susan Hunt. Check out the video here.