by OpenNotes It’s been a remarkable year for OpenNotes! In 2017 the number of health systems sharing notes and the number of patients with access to notes doubled. We’re excited by the momentum OpenNotes is gaining, but there’s still plenty of work ahead. Here are ten highlights from 2017 that have us energized for the…
patient's story
From Infancy to Young Adulthood: The difference notes can make
HOUSTON, TX – As the mom of a medically complex child, I was aware early in his life that I would need to help him learn how to manage his health as he was growing up. Henry was first hospitalized at three weeks of age, and I quickly realized my involvement in his medical care…
Where Did They Go?
My notes helped me follow my doctor’s orders so I could do what I wanted to do, play football. OAKLAND, CA – My name is Paris and I’m 19. I just graduated from high school. I played football (Defensive Tackle and Offensive Line) all four years of high school. I also played basketball and did…
Take Control of Your Health Care
by OpenNotes – posted first by Age Brilliantly on August 29th, 2017 “I’m a baby boomer, and my son’s on the other end of the baby boomers. We come from a place where doctors tell you what to do. Patients don’t ask the doctor anything, you know. He tells you and you go for it,…
Shift happens, if you let it
by Casey Quinlan, the “Mighty Mouth” of Mighty Casey Media LLC RICHMOND, VA – Culture change requires … culture change. Shifting one person’s thinking about an issue is a heavy lift. Doing that with a group, particularly a highly educated group used to being the smartest people in the room? That can be a monumental…
Why I hesitate to seek out regular and preventative care
by Mere Abrams, MSW, ASW SAN FRANCISCO, CA – Each time I go to the doctor, I pause before opening the door to the waiting room and take five deep breaths. I have no idea how I will be addressed, read, or referred to, even if it’s not my first appointment. As a trans nonbinary…
Learning to Speak Up: OpenNotes and Therapy
by Lori W., patient – BOSTON, MA – When asked if I was interested in writing a blog post for OpenNotes, I immediately said yes. But, it wasn’t long before panic set in. “What’s a blog?”…
Regina Holliday, Patient Advocate Extraordinaire, #Cinderblocks4
GRANSTVILLE, MD – The saying goes, if you want to get something done, ask a busy person. In Grantsville, Maryland, that’s Regina Holliday. Grantsville is a rural, one-road town
HIT Leaders & News: Accessing medical information online via patient portals
Linda Johnson was 3,000 miles away from her Seattle home visiting her daughter in Baltimore when she had a medical emergency. Fortunately, Linda, like many of our patients at Harborview Medical Center, has secure online access to her complete medical record, and in this critical moment, she was able to share that access with her daughter.…
New OpenNotes video!!
When Linda Johnson had a significant health scare away from her home in Seattle, she shared her medical notes from Dr. Sara Jackson and her care team at Harborview Medical Center, both with her daughter and the Baltimore hospital’s team that took care of her. Linda’s long term plan going forward is to involve her family…
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