Patients frequently depend on informal caregivers (e.g., family, friends, or paid workers) to assist with various aspects of medical care, such as medication administration and travel to medical appointments. OpenNotes seeks to share clinicians’ notes with patients through patient portals. Although patients frequently grant portal access to caregivers, the impact of this improved access to…
by Betsy Furler, mom and caregiver
HOUSTON, TX – As the mom of a medically complex child, I was aware early in his life that I would need to help him learn how to manage his health as he was growing up.
Henry was first hospitalized at three weeks of age, and I quickly realized my involvement in his medical care was extremely important.
My notes helped me follow my doctor’s orders so I could do what I wanted to do, play football.
by Paris, student/athlete
OAKLAND, CA – My name is Paris and I’m 19. I just graduated from high school. I played football (Defensive Tackle and Offensive Line) all four years of high school. I also played basketball and did some track and field stuff.