Millions of Americans are care partners but they are rarely identified or supported in care delivery. With a portal-based questionnaire, we identified participants with caregiving responsibilities and further evaluated them in order to offer support.
carousel
Whom Should We Regard as a Legitimate Stakeholder in the Accuracy of Information in a Patient’s EHR?
This case describes a care partner who was distressed by bias and inaccuracies in a loved one’s medical notes. Steve O’Neill LICSW, BCD, JD and Catherine M. DesRoches, DrPH, MSc offer guidance on how the doctors and hospital should respond.
JAMA Viewpoint Calls for Greater Transparency in Organ Transplant Selection Committees
A new JAMA Viewpoint co-authored by Aditya S. Pawar, MD (Beth Israel Deaconess Medical Center) and OpenNotes co-founder Tom Delbanco, MD, calls for a more transparent, patient-inclusive approach to organ transplant evaluation.
Near-wins in the pursuit of quality: does transparency matter if no one is looking?
In this new editorial for BMJ Quality & Safety, Sigall Bell, MD and Cait DesRoches, DrPH reflect on how access to medical notes can improve the quality of care, but only if patients are able to read and understand them. In the time between medical visits, when patients are monitoring their own health, AI may open a new frontier.
Beth Israel Deaconess Medical Center (BIDMC) Receives National Library of Medicine Award to Advance Patient-Centered AI
OpenNotes at Beth Israel Deaconess Medical Center (BIDMC) receives award from the National Library of Medicine to support development of artificial intelligence (AI) tools that help patients better understand and use their own health information.
Issue Brief: Shared Access to the Patient Portal
This issue brief summarizes the activities and learnings of the Coalition for Care Partners around shared access. Research has spanned from 2019 to 2025, including the formation of the Shared Access Learning Collaborative. The Coalition offers recommendations for policymakers, clinical leadership, patients, and care partners.
People Overtrust AI-Generated Medical Advice despite Low Accuracy
This article presents an analysis of how artificial intelligence (AI)–generated medical responses are perceived and evaluated by nonexperts. The increased trust placed in inappropriate AI-generated medical advice can lead to misdiagnosis.
Hospitalized patient portal access in the post-information blocking rule era
This single-center, cross-sectional observational study highlights low patient portal utilization among hospitalized patients and disparities in access based on race/ethnicity, gender, age, and insurance status.
Users’ perspectives on a demonstration to increase shared access to older adults’ patient portals
As shared access uptake remains low, the Coalition for Care Partners, and three healthcare delivery organizations, co-designed an initiative promoting shared access to the patient portals of older adults.
Gaps in the coordination of care for people living with dementia
This study examines care coordination breakdowns reported by patients living with dementia (PLWD) or their care partners. Interventions to improve communication across different care teams are needed to minimize the harmful effects of gaps in care coordination.
Except where otherwise noted, the content by OpenNotes is licensed under a Creative Commons Attribution 4.0 International License.
