OpenNotes at Beth Israel Deaconess Medical Center (BIDMC) receives award from the National Library of Medicine to support development of artificial intelligence (AI) tools that help patients better understand and use their own health information.
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Issue Brief: Shared Access to the Patient Portal
This issue brief summarizes the activities and learnings of the Coalition for Care Partners around shared access. Research has spanned from 2019 to 2025, including the formation of the Shared Access Learning Collaborative. The Coalition offers recommendations for policymakers, clinical leadership, patients, and care partners.
People Overtrust AI-Generated Medical Advice despite Low Accuracy
This article presents an analysis of how artificial intelligence (AI)–generated medical responses are perceived and evaluated by nonexperts. The increased trust placed in inappropriate AI-generated medical advice can lead to misdiagnosis.
Hospitalized patient portal access in the post-information blocking rule era
This single-center, cross-sectional observational study highlights low patient portal utilization among hospitalized patients and disparities in access based on race/ethnicity, gender, age, and insurance status.
Users’ perspectives on a demonstration to increase shared access to older adults’ patient portals
As shared access uptake remains low, the Coalition for Care Partners, and three healthcare delivery organizations, co-designed an initiative promoting shared access to the patient portals of older adults.
A Proof-of-Concept Study for Patient Use of Open Notes with Large Language Models
Can AI chatbots help patients make sense of their medical notes? This first-of-its-kind study published in JAMIA Open finds that with the right prompt, large language models may become powerful partners in understanding complex health information.
OpenNotes Joins PCORI-Funded Study to Advance Equity in Health Research
Funded by a $2.1 million award from the Patient-Centered Outcomes Research Institute (PCORI), OpenNotes has joined an initiative led by researchers at the University of Colorado to study and improve methods of engaging diverse and historically underrepresented communities in health research.
OpenNotes Study Aims to Mitigate Scanxiety & Misinformation in Cancer Care
Led by OpenNotes, the study, “Mitigating Misinformation & Scanxiety for Cancer Patients,” focuses on reducing the stress and confusion patients may face when receiving medical test results electronically before having the opportunity to discuss them with a clinician.
Gaps in the coordination of care for people living with dementia
This study examines care coordination breakdowns reported by patients living with dementia (PLWD) or their care partners. Interventions to improve communication across different care teams are needed to minimize the harmful effects of gaps in care coordination.
Shared access to patient portals for older adults: Implications for privacy and digital health equity
This viewpoint article discusses challenges and opportunities of systematic engagement of care partners through shared access to the patient portal that have been amplified in the context of the COVID-19 outbreak and recent implementation of federal information blocking rules to promote information transparency alongside broader shifts toward care delivery innovation and population aging. We describe implementation considerations and the promise of granular, role-based privacy controls in addressing the nuanced and dynamic nature of individual information sharing preferences and fostering person- and family-centered care delivery.
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