With evolving federal mandates and digital health adoption, adolescent access to open notes presents both exciting opportunities and serious challenges. Here we highlight 13 studies and commentaries that offer guidance on navigating the evolving landscape of open notes in adolescent health.
News from OpenNotes
OpenNotes Joins PCORI-Funded Study to Advance Equity in Health Research
Funded by a $2.1 million award from the Patient-Centered Outcomes Research Institute (PCORI), OpenNotes has joined an initiative led by researchers at the University of Colorado to study and improve methods of engaging diverse and historically underrepresented communities in health research.
Celebrating the First Anniversary of the OpenNotes Lab: A Year of Innovation & Collaboration
In one year, the OpenNotes Lab has become a vibrant space for exploring how new tools, including artificial intelligence (AI), can enhance patient-clinician relationships and improve care delivery. The Lab partners with organizations who demonstrate a commitment to co-designing health technology innovations in partnership with patients, alongside the academic rigor for which OpenNotes is known.
Report by ASTP Identifies Ways to Help Clinicians and Patients Share Social Determinants of Health with Support from OpenNotes
Combined efforts by ASTP and OpenNotes take a close look at how SDOH data is collected and shared in healthcare settings in a way that feels helpful, respectful, and inclusive for both patients and clinicians.
Looking Back at 2024: A Year of Growth, Discovery, and Collaboration in OpenNotes Research
As we step into 2025, we at OpenNotes find it the perfect time to reflect on the achievements of the past year. Each publication reinforces our mission to empower patients and care partners by improving how they access and engage with their health information.
Putting Patient Safety First with Open Notes: A New Toolkit for Healthcare Professionals
When it comes to keeping patients safe, every detail matters—and now there’s a new resource to help. If you’ve been curious about how sharing visit notes with patients can boost safety, here’s what you need to know.
OpenNotes Study Aims to Mitigate Scanxiety & Misinformation in Cancer Care
Led by OpenNotes, the study, “Mitigating Misinformation & Scanxiety for Cancer Patients,” focuses on reducing the stress and confusion patients may face when receiving medical test results electronically before having the opportunity to discuss them with a clinician.
OpenNotes and Abridge Partner to Research and Evaluate AI-Generated Visit Summaries
OpenNotes, an international leader in health transparency research, and Abridge, a leading generative AI platform for clinical documentation, launched a partnership that will bring patient-clinician conversations to the forefront of research to enhance patient notes.
Webinar Recording: Supporting Patients & Care Partners Through Health Information Technology
Being a care partner can be a deeply rewarding experience, but it also comes with unique challenges. How can health information technology ease some of this burden? Explore innovative ways to support patients and their care partners.
Statement: Health Data, Technology & Interoperability: Patient Engagement, Information Sharing & Public Health Interoperability
We support the ASTP/ONC efforts to provide regulatory clarification and protections for those patients and their clinicians whereby “information blocking exceptions for electronic health information (EHI) related to reproductive health care during interoperable exchanges” should be allowed.
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