Millions of Americans are care partners but they are rarely identified or supported in care delivery. With a portal-based questionnaire, we identified participants with caregiving responsibilities and further evaluated them in order to offer support.
Implementation
Whom Should We Regard as a Legitimate Stakeholder in the Accuracy of Information in a Patient’s EHR?
This case describes a care partner who was distressed by bias and inaccuracies in a loved one’s medical notes. Steve O’Neill LICSW, BCD, JD and Catherine M. DesRoches, DrPH, MSc offer guidance on how the doctors and hospital should respond.
Which Patients With Cancer Access Their Clinical Notes? A Disparities Analysis
Although clinician notes are now available to all patients, many of the most vulnerable populations are less likely to read them. This study tracks how ethnicity, race, and language impact who is opening their notes at a high-volume specialty cancer center.
Near-wins in the pursuit of quality: does transparency matter if no one is looking?
In this new editorial for BMJ Quality & Safety, Sigall Bell, MD and Cait DesRoches, DrPH reflect on how access to medical notes can improve the quality of care, but only if patients are able to read and understand them. In the time between medical visits, when patients are monitoring their own health, AI may open a new frontier.
Changes in Documentation After Implementing Open Notes in Mental Health Care: Pre-Post Mixed Methods Study
https://doi.org/10.2196/72667 Background The practice of providing patients with digital access to clinical narrative documentation by health care professionals (HCPs) is known as open notes. In mental health care, this innovation has the potential to increase transparency and foster greater trust in the treatment process. While open notes may improve the quality of care and patient…
Chaplains’ Charting in the USA in the Era of “Open Notes:” Recommendations from a Quality Improvement Project
This paper addressed the particular needs of chaplains in oncology settings where relationships tend to be longer. It recommends using strengths-based language, avoiding language that suggests disbelief, shortening notes, and using documentation to extend spiritual care.
A multicenter randomized trial to improve family clinical note access and outcomes for hospitalized children: The Bedside Notes study protocol
https://doi.org/10.1002/jhm.70155 Introduction The 2021 Cures Act mandates caregiver access to their child′s medical notes with few exceptions, yet fewer than 10% access notes during hospitalization. Caregiver review of real-time notes facilitates identification of safety concerns and may enhance patient safety in pediatric hospitals. This trial will evaluate the Bedside Notes intervention—a multifaceted approach to enhance…
Users’ perspectives on a demonstration to increase shared access to older adults’ patient portals
As shared access uptake remains low, the Coalition for Care Partners, and three healthcare delivery organizations, co-designed an initiative promoting shared access to the patient portals of older adults.
Identifying, Engaging, and Supporting Care Partners in Clinical Settings: Protocol for a Patient Portal–Based Intervention
This study aimed to implement a novel patient portal–based intervention to identify, engage, and support care partners in clinical settings. Early results suggest that the intervention could be an easily scalable and adaptable method of identifying and supporting care partners in clinical settings.
Patients and families reading their discharge summaries: A cross-sectional analysis of benefits, concerns, and implications
Rapidly spreading information transparency could transform how patients engage in care and communicate with clinicians. Patients and families report benefits from reading discharge summaries; however, over a quarter reported a concern.
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